Doctors Missed His Son's Disease for 20 Years | Ep. 400 with Chuck Knueve
Descripción del Episodio
Daniel Robbins interviews Chuck Knueve about watching his son suffer for decades while the healthcare system searched for answers. Chuck breaks down why Cushing’s disease is so difficult to diagnose, what he believes is broken in the process, and how earlier testing could prevent irreversible harm. He also shares why he wrote the book during COVID, how he learned to write at 73 by joining writing guilds, and why he structured the story through his son’s point of view to show what families live with at home, not just what doctors see in clinics.
Key Discussion Points
Chuck explains that diagnosis often takes years because Cushing’s hides behind common symptoms, and his son’s case took over twenty years.
He argues the issue is not one person, but the diagnostic process and guidelines, especially testing not happening soon enough.
Chuck shares the early red flags he wishes had triggered action sooner, including the “buffalo hump,” “moon face,” and abdominal stretch marks appearing together.
He emphasizes the importance of finding an endocrinologist who specializes in Cushing’s disease, ideally at a university or teaching hospital.
Chuck describes the moment he committed to writing the book, a family Zoom call during COVID where his siblings challenged him to start.
He explains why he added jingles: not to be cute, but to create memory triggers that help people recognize the pattern months or years later.
Takeaways
Rare diseases can hide in plain sight, and persistent multi-symptom patterns deserve early testing, not years of waiting.
Parents and patients often have to advocate harder than they think, including pushing for specialist care when the path stalls.
Even when the disease is corrected, delayed diagnosis can mean permanent damage, which is why time is the real enemy.
Writing can become advocacy, and Chuck’s goal is simple: make the next family’s journey shorter than his son’s.
Closing Thoughts
This episode is a reminder that medical systems can miss what families live with every day, and that a single story can change awareness faster than a guideline update. Chuck Knueve turned decades of pain into a practical tool for earlier recognition and better outcomes. If you suspect something is off and you keep hearing “wait and see,” this conversation will push you to ask better questions and keep going.
Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
Episodios Recientes
Más podcasts de Sociedad y Cultura
Ver toda la categoría →
Dumb Blonde
By shows
<p>Asking the questions others are afraid to. Bunnie XO host of the Dumb Blonde podcast – the ultimate destination for comedy, trending and lifestyle. Get ready to dive into hilarious discussions about relationships, trauma, embarrassing moments, and all the realness life throws at us. Join Bunnie every week to laugh, relate, and embrace your inner healing.</p>
The Snare
By shows
In 1996, 18-year-old Angie Dodge is found brutally murdered in her Idaho Falls home. Police zero in on a suspect and put a man behind bars. But as the years pass, doubts emerge about whether the real killer was ever caught. Leading the fight for answers is an unlikely advocate: Angie’s own mother, who embarks on a decades-long mission to uncover the truth. A six-part series from 20/20 and ABC Audio, hosted by Maggie Rulli. New episodes Tuesdays.
Joy 101 with Hoda Kotb
By shows
<p>Joy is essential.</p> <p>And it's also elusive. You can't order it, borrow it, or simply hope it into life.</p> <p>But now, there's a new and exciting way to start your journey toward a more joyful existence: The Joy 101 Podcast with Hoda!</p> <p>Best known for her Emmy-winning work and co-anchoring <em>Today,</em> Hoda Kotb infuses her authenticity, curiosity, and warmth into conversations with the world’s most fascinating people. Entertainment legends, sport icons, wellness experts, and everyday folks will share how they find, allow, and experience joy. Hoda will offer her own tips and takes on seeking a more balanced, harmonious life. </p> <p>If you're craving inspiration, support, and useful tools to maximize your joy, tune in to these candid, uplifting, and moving on-air chats.</p> <p>Joy after a breakup, joy as an empty-nester, joy after loss, joy as a caretaker — Hoda's new podcast will speak to you.</p> <p>Joy 101 with Hoda Kotb, an iHeartPodcast.</p>
La Silla: On The Record
By shows
Cada semana contamos movidas de poder en Colombia a través de la voz de sus protagonistas. Un podcast de La Silla Podcasts.
Dinero Más Inteligente
By shows
El dinero no solo se gana, se entiende. <br /> En El Dinero Más Inteligente, Valeria Ovalle presenta la economía y Juan Carlos Herrera la conecta al mundo de inversiones. Una conversación entre razón y estrategia para entender el mundo financiero sin complicaciones. <br /> By GBM <br /> Síguenos en <b><a href="https://www.instagram.com/gbmplus_?igsh=czBzOG5mazBwMmlj&utm_source=qr">Instagram</a><b>.</b></b>
Lo que NO se habla con Fer Flores
By shows
Contenidos para construir una Humanidad con H mayúscula con perspectiva psicoanalista, médica, legal, antropológica y espiritual.
After the Whistle with Brendan Hunt and Rebecca Lowe
By shows
<p>Rebecca Lowe (Fox Sports) and Brendan Hunt (‘Ted Lasso’) are teaming up again to take on the 2026 World Cup! They’ll ride an emotional roller coaster together as 48 teams play 104 action-packed matches across the U.S., Canada, and Mexico. They’ll bring you all the joy and the drama, the hope and the heartbreak — and help you understand the matchups and personalities that will make this the biggest sporting and cultural event of our lifetimes</p><p>‘After the Whistle With Brendan Hunt and Rebecca Lowe’ is an Apple News Original podcast presented by Verizon.</p>
